Gaming, similar passions and rare disease connect two people separated by an ocean

Gaming, similar passions and rare disease connect two people separated by an ocean


A native of Scotland, she loves “wild” (in other words non-pool) swimming in nearby lakes (including Loch Ness) with friends and family. In the winter, she uses a wetsuit, but she doesn’t need to wear braces or tape in the cold water, which soothes her joints. Mountain hikes are also part of her routine – though her backpack comes with a feeding tube. She’s also six months out of medical school, doing a vascular surgery rotation as a junior doctor (the equivalent of a medical residency program in the U.S.). She intends to pursue a career as a pediatric physician.

“In pediatrics it’s very much about helping children live with what they have,” she says. “It’s about getting their symptoms controlled to a point where they can do the things they want to do.”

This is a philosophy that also drives her own approach to the disease she lives with.

She has never met anyone in person who also has this rare disease – though she had perused some online support forums – but recently she connected with a teenager in the U.S. who is also living with Ehlers-Danlos. They star in “Beyond Xbox: A Player Like Me,” the next film in the Xbox “Beyond” series, which began with “Beyond Generations.”

Read more about their connection on Microsoft Stories.



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